Health services for women with learning disabilities
Summary
Powerhouse for Women is a women’s only charity based in Newham, East London which aims to empower women with learning disabilities, who as a group are marginalized and disadvantaged in general society. The overall aim of the research project was to enable women with learning disabilities in Newham to discuss their concerns and share their experiences of community health services. The research was delivered using focus groups and 1-1 interviews.
To get an appointment is a nightmare; they say no we can’t do anything even if she has no medication.
Key findings
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Annual health checks are offered and taken up by 75% of the women involved in the research.
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60% of the group reported that they do not have enough time to discuss their health issues with the doctor or nurse.
- 50% of the group have had to use A&E Newham General, for epileptic fits/other seizures/heart related episodes with mixed experiences.
- Only 1 woman in the group knew and had used the Liaison Nurse. “She was helpful, she was with me the whole time in case I had a fit” (Newham mental health unit).
Recommendations
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Make it easier for women who do not have access to mobile phones or internet to book an appointment.
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Allow extra time for people with learning disabilities in the appointment, because they may take time to settle and be able to discuss their health issues.
- Provide a higher level of service through training when doing blood tests for those on the autistic spectrum to alleviate anxiety and possible avoidance of these tests.
- Liaison Nurses at hospitals should be made known, easily accessible and available to those with learning disabilities on admission to hospital.
- Standardise the service offered across surgeries in Newham to improve access.
- Further investigation into Newham General Hospital which had negative feedback in terms of their understanding and support to people with learning disabilities as compared to Gateway.
