Learning Disabilities + Autism Focus Group – Bowel Cancer Screening
Healthwatch Newham hosted a focus group to explore the challenges faced by individuals with Learning Disabilities (LD) and autism in accessing bowel cancer screening. Participants discussed barriers to healthcare, the complexity of screening kits, and gaps in medical communication.
Key Findings
- Many participants struggled to access GP services due to long wait times and dismissive attitudes.
- Poor communication between psychiatrists and GPs led to gaps in patient care.
- Bowel cancer screening kits were difficult to use, with small collection areas and confusing instructions.
- Language barriers and limited awareness of bowel cancer further hindered screening uptake.
- Many participants were unaware of the Health Passport, a tool designed to support LD patients in healthcare settings.
Recommendations
- Improve GP accessibility and staff training to better support LD patients.
- Redesign screening kits to make them more user-friendly.
- Provide clearer instructions, including easy-read guides and video explanations.
- Increase public awareness through TV, online, and GP surgery campaigns.
- Train carers and support workers to assist with screening and medical communication.
